March is Endometriosis Awareness Month, and today we’re going to hear from two women with Endometriosis, explain the wide variety of symptoms, and share why cannabis is giving hope to women living with the painful symptoms of Endo. One in 10 women has Endometriosis, and many women have been suffering in silence for years. Please share this episode with all your women friends!
Ellen Scanlon: This podcast discusses cannabis and is intended for audiences 21 and over.
Jessica Murnane, Know Your Endo: I think the question that I hear the most is just is this normal, dot, dot, dot, because a lot of us with endo don’t even know what all the symptoms are. When I speak to girls in high school, you have to think about when you were 16. It was kind of strange if a woman came in and started talking about periods and this crazy disease that they had never heard of. No one wants to raise their hand, but I will always have at least two young girls come up to me and say, “I think I have this.” And obviously we can’t diagnose someone in a session in high school, but the fact that they are able to recognize, “Oh my gosh, having painful periods, having GI symptoms, having fatigue, bleeding through my pants at school is not normal.”
Ellen Scanlon: Welcome back to How To Do The Pot. I’m Ellen Scanlon, the co-creator of the show. You just heard from Jessica Murnane, an endometriosis advocate, host of One Part Plant podcast, and author of the upcoming book. Know Your Endo.
Ellen Scanlon: So what is endometriosis? The Mayo Clinic defines it as an often painful disorder in which tissue similar to the tissue that normally lines the inside of your uterus, the endometrium, grows outside of your uterus. Today we’re going to hear from two women with endometriosis, explain what the symptoms are, and share why cannabis is giving hope to women living with the painful symptoms of endo. March is Endometriosis Awareness Month, and if you listened to episode two on How To Do The Pot, you know that I have endometriosis. It’s really important to me to tell these stories and please share this podcast with any women that you think it also might help.
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Ellen Scanlon: Can you picture 10 of your women friends? Now think about this. One in 10 women has endometriosis. It’s very, very, very likely that you know a woman who has it. And most women have been suffering for a long time, mostly in silence. Jessica Murnane’s pain started in her teens.
Jessica Murnane, Know Your Endo: In high school, pretty much every single period my mom had to come pick me up from school. So it wasn’t out of the norm that my mom picked me up every time I got my period at school, or that I bled through my pants because the same thing happened to her. We just thought that that’s what it was like.
Ellen Scanlon: It wasn’t until our late 20s that she found out that endometriosis was the cause of her chronic pain.
Jessica Murnane, Know Your Endo: After a couple very traumatic ER visits, where I was in debilitating pain, like I couldn’t even stand up. I feel emotional when I talk about this part, but I just remember lying on the ground, looking up at my husband and just saying, “I don’t think I’m going to make it through this one.” Almost feeling at peace that I might die that night. One of the ER doctors sent me to a doctor, that sent me to another doctor, and I finally found someone that believed my pain and said, “Let’s do a surgery to see what’s going on inside.” So at that point, I never even had heard of the word endometriosis before.
Jessica Murnane, Know Your Endo: When they went in, I had extensive stage four endo. They did an emergency laparotomy. And wild thing is, is that I just thought all of the pain that I had was normal until I went to the ER.
Ellen Scanlon: Women see an average of eight doctors while they try to figure out what’s wrong, a time consuming, expensive, and often demoralizing journey. And you can only be officially diagnosed with endometriosis after having surgery.
Jessica Murnane, Know Your Endo: That’s if you have the financial means to see eight doctors. A lot of times when we talk about endo, we are talking about people that got a diagnosis. But think about all of those people that are still struggling because they’re not able to see one doctor, or two doctors. A lot of time in this space, it’s like, “Find a doctor that believes you. Keep searching.” Not everybody has the means to do that. And so I think just knowing the symptoms and being able to empower yourself with maybe this is what I have, maybe I can start managing it, if I don’t have access to get surgery, it can be really powerful.
Ellen Scanlon: It also it takes an average of 10 years for women to be diagnosed.
Jessica Murnane, Know Your Endo: Another misconception about endo is that everyone that has endo has painful periods. That’s not true. Knowing that fact, I think can be incredibly helpful for women, because if we’re told that endometriosis means painful periods, then if you’re experiencing other symptoms, you’re like, “Well, there’s no way I have endo because I don’t have painful periods.” And what happens a lot of times is that with people that don’t have painful periods they are not diagnosed until they have other types of issues, let’s say infertility or extensive GI issues. And then they might receive a diagnosis.
Jessica Murnane, Know Your Endo: 45 to 50% of unexplained infertility or fertility issues is endo. So I think there are a lot of people that are not diagnosed until they start down a path of fertility options because they’re unable to get pregnant. The major symptoms of endo, I think a lot of people with endo do have painful periods, but fatigue, leg pain, shoulder pain, hip pain, urinary issues, GI issues, painful urination, painful diarrhea, painful sex, bloating, nausea. It’s a lot of symptoms, and I think that’s what’s so complicated about it sometime is that if you have horrible GI issues, you’re not going to a gynecologist to talk about that, you’re going to a GI specialist. And they might run you through all of these tests and can’t find anything, and then you’re sent on your way, like, “Well, we don’t know what’s wrong with you. And it could be endo.”
Ellen Scanlon: If these symptoms sound familiar to you, you’re not alone.
Jessica Murnane, Know Your Endo: There was a study that the BBC did that out of the 13 and a half thousand people they interviewed with endo that nearly half of them had suicidal thoughts. And when I first read that it was, I can cry again thinking about it, it was so heartbreaking to me . In some ways it was also validating for things that I had felt, things that I hear other people feeling, and I think the mental health aspect has so many different levels because it’s not just the pain that’s making you depressed. It might be the fact that no one is believing your pain. It might be the fact that you’re not able to afford proper healthcare. It might be the financial toll that endo has caused you. I mean, I understand being in this dark place where I was 10 years ago before I found tools that helped me manage my endo.
Ellen Scanlon: Kerrigan Behrens, the co-founder of CBD wellness company Sagely Naturals shares a similar story about dealing with chronic pain and discovering that it was endometriosis.
Kerrigan Behrens, Sagely Naturals: Like many women who end up figuring out that they have endometriosis, I had it for many, many years without knowing that I had it. When I was younger, I would stay home from school at least a day a month because my cramps were so bad. And at that time, my doctor recommended that I go on the birth control pill. I think that happened when I was like 13 years old and it definitely helped. It allowed me to not be as debilitated by my cramps, but the cramps were still definitely really bad.
Kerrigan Behrens, Sagely Naturals: And I just always thought that that was normal. Women have cramps. What I didn’t know was that being on the floor in a ball because you’re in so much pain was not normal, but it took me a couple of decades to really progress in my understanding of what was going on with my body.
Kerrigan Behrens, Sagely Naturals: So I figured it out actually indirectly. I had been dealing with really chronic lower back pain and it was stopping me from exercising. It was bothering me every single day and the pain was pretty acute. And this was all before I was 30 years old. And that didn’t seem normal. Like cramps, sure, women get cramps, but to be in pain everyday before you’re 30 years old, that didn’t seem normal. Without boring you with my entire story of all the doctors I saw, it literally ended up being 14. I saw chiropractors. I saw neurologists. I saw a rheumatologist because I thought maybe I had arthritis. And actually it was the rheumatologist who finally had me do a really comprehensive MRI, and she called me with the results, and I’ll never forget that moment because I was driving. And she said, “We didn’t see really what we expected to see. You have a cyst in your ovary, and it’s called an endometrioma, and it means you have a disease called endometriosis.” And I had never heard of it before. And she said, “I have no idea if this is why you’ve been in pain or not, but you really should go see a gynecologist.” And one of the things that she said was, “Well, it’s a disease that can cause infertility.” And so I had to pull over cause I was crying. I had not expected to hear that. And it also just felt scary and unfamiliar.
Kerrigan Behrens, Sagely Naturals: In one sense, I was kind of lucky that I had had this MRI because most women who have endometriosis don’t necessarily have things that are visible in MRIs. So to have the cyst made the problem a lot more obvious. And from there I was able to take steps to actually deal with the endometriosis itself, including things like surgery. But part of the problem with the disease is that unless you have a cyst like I did, you can’t diagnose it without surgery. So I don’t think most women would be voluntarily signing up for a surgery for something that they don’t know that they even have.
Kerrigan Behrens, Sagely Naturals: I had the cyst removed. I also had all of the endometrial cells, all of the buildup, removed. The way that it was best described to me was like a system of cobwebs that grow in and outside of your reproductive system. And so I knew going into the surgery that I was going to need to have the cobwebs removed as well as the cyst removed. What I didn’t know going into the surgery was that I was also going to end up needing my appendix removed because it was so inflamed from all of the endometrial cells sticking to it. And that’s, I think, actually not all that uncommon is it can cause different organs to fuse. It can cause organs to be inflamed. So I went into the surgery having signed something saying like, “Please take out as much as you can.” And woke up, and they were like, “Yep. So had to take out your appendix, which was not expected.”
Ellen Scanlon: Managing chronic monthly pain for many women with endo feels like their other part-time job. Kerrigan describes what she used for pain and how discovering CBD changed her life.
Kerrigan Behrens, Sagely Naturals: A lot of Advil, which ended up being really problematic because I was taking so much of it that I almost got an ulcer. Advil helped with the cramps, but it didn’t help with that still sort of unidentifiable pain that I had in my lower back. What did help was using CBD. And that’s part of the reason why I never looked back after trying it for the first time. It became a passion for me so quickly because I was in such desperate need for it that within a month of trying CBD for the first time I was starting my company.
Ellen Scanlon: She describes the first time she tried CBD and its effect on her body.
Kerrigan Behrens, Sagely Naturals: In 2015, when I saw it on a friend’s kitchen counter. It was CBD honey. And I basically ran over to it and was like, “Can I have some?” And I dissolved some into a cup of hot water and like an hour later, my body was just more relaxed than it had been in a really long time. And when you deal with chronic pain, I don’t think you even realize how much your body tenses up. Between anxiety and then pain, I think I’m just in a constant state of tension, clenching my muscles. And so that was the first thing that I noticed was that my body kind of relaxed. And then I noticed that I was in less pain. And then I noticed that I was also feeling less anxious than I normally do. And that was the true aha moment. Like, wow, this is going to change my life.
Ellen Scanlon: Jessica had a similar experience the first time she tried cannabis.
Jessica Murnane, Know Your Endo: I actually was someone that was one of those straight edge kids that hung out with like the straight edge punk kids in high school in college. And so to me, drugs and alcohol were really uncool. I actually didn’t try cannabis for the first time until I was 33 years old. And I tried it because the friend I was with told me he was like, “Just try it, just try it.” And I don’t know why, but that night I decided to try it. And the way that my body relaxed, I feel like for the first time in maybe my whole life, since I got my period, it felt so incredible. And I didn’t even do any research about it afterwards. I just felt like, “Okay, so this works. This is going to help me.”
Jessica Murnane, Know Your Endo: And then after discovering it, I definitely, for myself, over did it, where every single night I was getting extremely high to the point where it was not very functional, and that was not sustainable for me. So I learned to use cannabis in a way that feels right for my lifestyle and that I can just feel like it’s best for me and my endo. And there’s weeks where I don’t do it at all. There’s weeks where I do it four nights in a row. But I think for me, it’s not about a high. It’s about giving my body permission in a way to say, “Okay, you can take a break right now.” And that just feels like the biggest luxury in the world.
Jessica Murnane, Know Your Endo: With cannabis and CBD, it’s so personalized to the individual. CBD and cannabis affects everyone so differently. So it’s hard to say, this is how much you should take, and this is how often you should do it. And I think you really have to do that research for yourself too, after at least knowing that it can be a powerful plant to help.
Ellen Scanlon: This is the point in the show when we tell you you have to experiment. And it’s one of the reasons that I think cannabis is growing in such a word of mouth way, because it’s a lot of women who’ve tried everything, and cannabis is the first thing that started to work for them. And then they tell their friends. I wish it weren’t the case, but I think for a lot of people, you have to get to a place where you really have tried everything and nothing’s worked and you’re just willing to do something that might feel uncomfortable.
Jessica Murnane, Know Your Endo: Yeah. And I think it’s similar to diet. There is no endo diet that works for everyone. I can not eat eggs. Someone else might be able to eat eggs just fine. And I wish that I could create the most perfect endo diet and plan for every person with endo, but all of our bodies are so unique that I think we do have to be willing to experiment a little bit.
Ellen Scanlon: CBD is showing a lot of promise and treating the symptoms and possibly the causes of endo. So we encourage you to talk to your doctor, but we know that isn’t always easy to bring up or to find answers.
Kerrigan Behrens, Sagely Naturals: The FDA does not allow us to tell people you should use our products for the things they’re actually using them for. And that’s okay, because we want to be responsible, but what’s not okay is like the thing we’re supposed to tell people is go talk to your doctor and their doctor will have less information than we do. So I hope that that’s something that can be resolved sooner rather than later.
Ellen Scanlon: Jessica has a practical and simple solution that I love for how to raise awareness around endo.
Jessica Murnane, Know Your Endo: It’s cheesy to say that knowledge is power, but in the case of endo, it is. When we go to a gynecologist, we have to get a breast check and they give us a pamphlet about checking your breasts for lumps or get a pamphlet about STDs. Where is the pamphlet on endometriosis? The very first time you go to the gynecologist, they should give you a piece of paper that lists all the symptoms, because one in 10 women have it. We need to know the symptoms. I think not knowing the symptoms, it just creates such a lag of time in getting diagnosis.
Ellen Scanlon: When you’re at your next doctor’s appointment consider asking your doctor for a pamphlet on endo. And if they don’t have the information available, ask why not? Let’s start this conversation so more women don’t have to suffer.
Ellen Scanlon: And please listen to episode two and episode 15 of How To Do The Pot, if you have questions about endo and cannabis, or you can always reach out to us on socials or at email@example.com.
Ellen Scanlon: Today’s high five for managing your endo with cannabis. Number one, know the symptoms. They can vary a lot. Painful periods, fatigue, leg pain, shoulder pain, hip pain, urinary issues, GI issues, painful urination, painful diarrhea, painful sex, bloating, nausea, infertility. Knowyourendo.com is a great resource to learn more. One of the biggest challenges with endo is the unpredictability of the pain. Cannabis based tools can help you feel more confident that you can take care of yourself without side effects or over the counter or prescription drugs.
Ellen Scanlon: Number two, to help manage your pain in under five minutes, try a CBD vape pen. The vaping disease was scary, but research has shown that people got sick from pens purchased in the illegal market. Try a CBD vape pen from a licensed dispensary which is regulated and tested. And if that isn’t available where you live, check out our list of trusted CBD companies on dothepot.com. When I need very fast pain relief, I use a CBD vape pen from Bloom Farms or Quill, and both can be purchased online in all 50 states.
Ellen Scanlon: Number three, to help your pain and under minutes, cannabis topicals. Rubbing a CBD cream or oil on your lower abdomen or whatever spot is the most painful for you can bring relief to that place very quickly. Kerrigan’s company, Sagely Naturals, triple test their products, and has recently added extra strength versions of their extremely popular CBD Relief and Recovery Cream, which I also use.
Ellen Scanlon: Number four, pain relief in under 15 minutes, CBD oil tinctures. Oil tinctures need to be held under your tongue for 30 to 60 seconds to get the full effects. And I suggest increasing your dosage a few days before your cycle starts. So for example, try a dropper maybe once in the morning, once in the evening, then use it as needed for pain during your period. This is where you have to experiment to find the right dose for you.
Ellen Scanlon: Number five, pain relief in under 30 minutes, suppositories. Suppositories look like applicator-less tampons, and you insert them before you put in a tampon. Once they’re in your body, the solid becomes a liquid so lay on your bed with your pelvis elevated for 10 to 20 minutes. They offer long lasting relief, often up to six hours. I like to wear Thinx Period underwear. I actually recommend them for anyone with endo, no matter what you’re using for pain relief, and try suppositories from 4:00 AM Mellow or in California, women owned Hello Again.
Ellen Scanlon: For today’s strain recs, pain relieving and body relaxing, Blackberry Kush, one of the 12 essential strains for women. You can listen to episode 32 of How To Do The Pot for all the details. It relaxes menstrual cramps, as well as the anxiety, stress and insomnia that can be brought on by changing hormones. Cannatonic, it’s an almost, one-to-one dosage of CBD to THC, so it’ll bring on a quiet high that soothes your body and your mind and it also prevents and reduces inflammation. It’s one of my favorite strains. It was actually one of my most favorite strains. I picked it for one of my top three of 2020. Harle-Tsu, it’s nearly all CBD, so that’ll be non-intoxicating, and it promotes feelings of happiness and relaxation. It also helps with pain, inflammation, and stress.
Ellen Scanlon: For today’s podcast picks, April likes Believed from NPR. How did Larry Nasser, an Olympic gymnastics doctor get away with abusing hundreds of women and girls for two decades? Believed is an inside look at how a team of women won a conviction in one of the largest serial sexual abuse cases in US history.
Ellen Scanlon: I like The Cycle podcast hosted by Melissa Boudreaux. It’s a podcast about sharing endometriosis stories and creating a community to help others who are suffering.
Ellen Scanlon: How to do the pot? Listen to Cannabis Voices hosted by Mary Biles. Dr. Ethan Russo explains how a deficient endocannabinoid system may contribute to the development of endometriosis.
Ellen Scanlon: Thank you for listening to How To Do The Pot. Please let us know what you think. Find us on Instagram @DoThePot and for lots of more information and past episodes, visit dothepot.com. Thank you to April Pride, to Madi Fair, our brand manager, and our producer, Nick Patri. I’m Ellen Scanlon, and we’ll be back soon with more of How To Do The Pot.
So you must be legal, too. Age 21+ invited to continue.